nursing2go

As a doctoral student in nursing informatics I’m very interested when a new search tool comes out. I saw an article about deepdyve on Google news.

http://news.cnet.com/8301-17939_109-10093575-2.html

I gave it a try.

http://mysearch.deepdyve.com/start.php

I don’t have anything positive to report so far. I tried searches on “personal health records research”, “personal health records”, and “PHR”. All searches took a long time to complete. All searches returned NO results. deepdyve’s email giving me my username and password says I would be able to,  ”…access the wealth of untapped information that resides in the ‘Deep Web’.”  If the results deepdyve returned on my subject of interest are what is available in the “Deep Web”, I guess I better stay on the surface for now.

November 18, 2008

Update: I received an email a couple days after I saw the original story. It explained that high demand caused several users to get no results. I did go back and try another search. It may be a good tool after you learn how to use it, but it does look like there is a bit of a learning curve.

I just learned a neat trick with Endnote today. You can search online (like Pubmed) and download all your references. Then you can select your references and have Endnote download the complete text of articles which are available. On the section of references I tried out it was able to find and download about 20% of them. I figure that’s a few fewer articles that I have to track down myself.

U of U Technology Commercialization

http://www.research.utah.edu/funding/tcp.html

University of Utah

http://brain.utah.edu/

Vignette

http://www.vignette.com/

U of U project

https://www.unite.utah.edu//

Link:

http://www.iwg-online.org/projects/redcap/index.php

” Electronic Data Capture (EDC) for clinical research studies has been identified as a top priority need by IWG and AGITP membership (through survey and GCRC annual meeting engagement). Although clinical trials software exists, most are geared around the business or project-management side of studies, rather than raw data capture and dissemination. Commercial EDC software is expensive from both a monetary cost and time to initiate and manage case report forms for individual studies. Several open-source EDC products are available, but appear also to be costly from a time commitment standpoint, especially when running multiple, concurrent studies.”

Link:

https://www.i2b2.org/

“i2b2 (Informatics for Integrating Biology and the Bedside) is an NIH-funded National Center for Biomedical Computing based at Partners HealthCare System. The i2b2 Center is developing a scalable informatics framework that will bridge clinical research data and the vast data banks arising from basic science research in order to better understand the genetic bases of complex diseases. This knowledge will facilitate the design of targeted therapies for individual patients with diseases having genetic origins. The i2b2 is funded as a cooperative agreement with the National Institutes of Health.”

Link:

https://cabig.nci.nih.gov/

“caBIG™ stands for the cancer Biomedical Informatics Grid™. caBIG™ is an information network enabling all constituencies in the cancer community – researchers, physicians, and patients – to share data and knowledge.  The components of caBIG™ are widely applicable beyond cancer as well.”

Asterisk

http://www.asterisk.org/

TrialDB

http://ycmi.med.yale.edu/trialdb/

OpenClinica

http://www.openclinica.org/

Article about the subject

http://medicine.plosjournals.org/perlserv/
?request=get-document&doi=10.1371/journal.pmed.0050006&ct=1